华西口腔医学杂志

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唇腭裂患儿父母生活质量及其影响因素研究

翟堃1,2  杨雄1,2  信燕华1,2  周忠伟1,2  马坚3  朱晋芳3  王怡瑞4  黄永清1,2,3   

  1. 1.宁夏医科大学口腔医学院；2.宁夏口腔医学研究所；3.宁夏医科大学总医院口腔颌面外科，银川 750004；4.清华大学医学院，北京 100084
  • 出版日期:2013-06-01 发布日期:2013-06-01
  • 通讯作者: 黄永清，Tel：0951-6743384
  • 作者简介:翟堃（1984—），男，河北人，住院医师，硕士
  • 基金资助:

    国家自然科学基金资助项目（81160131）

Study on life quality and influence factors in cleft lip and palate parents

Zhai Kun1,2, Yang Xiong1,2, Xin Yan-hua1,2, Zhou Zhongwei1,2, Ma Jian3, Zhu Jinfang3, Wang Yirui4, Huang Yongqing1,2,3.   

  1. 1. College of Stomatology, Ning-xia Medical University, Yinchuan 750004, China; 2. The Ningxia Oral Medicine Institute, Yinchuan 750004, China; 3. Dept. of Oral and Maxillofacial Surgery, Hospital of Ningxia Medical University, Yinchuan 750004, China; 4. School of Medicine, Tsinghua University, Beijing 100084, China
  • Online:2013-06-01 Published:2013-06-01

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摘要：

目的  了解唇腭裂患儿父母生活质量现状，确认其影响因素，为改善唇腭裂患儿父母生活质量提供理论依据。方法  选取行一期唇腭裂畸形整复手术患儿的家长143例作为病例组，109例正常成年人作为对照组，2组均接受一般情况问卷、生活质量综合评定问卷（GQOLI-74）、社会支持评定量表（SSRS）的测评。对2组的结果进行统计分析，并对可能影响生活质量的各因素进行多元线性逐步回归分析。结果  1）病例组生活质量总分、心理功能维度、社会功能维度、物质生活维度得分均低于对照组（P＜0.05）。2）病例组社会支持总分、主观支持维度和社会支持利用度维度得分均低于对照组（P＜0.05）。3）病例组社会支持总分、客观支持维度得分、主观支持维度得分与其生活质量总分及各维度得分均成正相关。4）影响病例组生活质量的相关因素为社会支持和人均月收入。结论  唇腭裂患儿父母生活质量及社会支持情况偏低，应给予其更多的支持与帮助，提高其生活质量。

关键词: 唇腭裂, 父母, 生活质量, 社会支持

Abstract:

Objective  To investigate the life quality and their influence factors in cleft lip and palate parents and to provide evidences for improving the life quality of the parents. Methods  One hundred and forty-three parents whose children accepted the primary surgery of cleft lip and palate were selected as the case group, and 109 normal adults as the control group. Both groups were investigated by 3 questionnaires that included questionnaire of general status, generic quality of life inventory-74(GQOLI-74), social support rating scale(SSRS). The results of two groups were analyzed and the influence factors on life quality were studied by stepwise multiple regression analysis. Results  1)The scores of the life quality, mental function, social function, material life in the case group were significantly low com-pared with the control group(P＜0.05). 2)The social support total scores, subjective support and utilization of social sup-port were lower than the control group(P<0.05). 3)Social support, objective support, subjective support positively correlated with life quality scores and every dimension score in the case group. 4)The relevant factors affecting life quality were social support and income. Conclusion    The life quality and social support of cleft lip and palate patients is poor, we should give more support and help to improve their life quality.

Key words: cleft lip and palate, parents, life quality, social support

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